Dementia. Change the story.
Here’s the story of dementia:
“The long goodbye. Gone. Shadows of their former selves. Victims. Not there.”
The tale of dementia is so pervasive and disabling that even those people who are just diagnosed with dementia become characters in this story as well. People around them start to say “goodbye.” Most people with dementia say “goodbye” to their lives and prepare for the worst.
The end of this story? Loss of purpose in living, loss of self-confidence, increasing withdrawal and isolation, and ultimately, to untimely dependency on those around them. Caregivers become stressed out, angry, guilty and isolated.
But if we write a new story of dementia, we can write a new ending as well.
By listening to the lived experiences of dementia, Mindset Centre for Living with Dementia is contributing to a new story, one where instead of “goodbye,” we say “hello,” and where people with dementia are authors in their own stories. We are doing this through:
- Online educational programs for people with dementia, caregivers, and professionals.
- Mindset Clubs for people with dementia and their families, post-diagnosis boot-camps, and partnerships with innovative organizations such as To Whom I May Concern® interactive theatre projects.