Why We All Need to Hear from People with Lived Experience of Dementia
What do you know about dementia? Fortunately, we live in a time where information on just about anything is readily available. Books, research, websites and videos created by those who have a formal education are abundant. Courses are available at many Alzheimer...Changing the Story of Dementia Starts with Sharing the Story
Storytelling is the social and cultural activity of sharing stories, often with improvisation, theatrics, or embellishment. Stories or narratives have been shared in every culture as a means of entertainment, education, cultural preservation and instilling moral...How and Why I Got Involved in Changing the Story of Dementia
I often get asked why I am so involved with the world of dementia, with advocates with dementia, with changing the story of dementia. The reason is because we lived that story with my mother. Eight years ago, my mother, Betty, passed away, we think from vascular...Old Story, New Story: Choose the Right Story
Well, 10 months into “Changing the Story of Dementia,” and I admit I was wrong. I can’t change the story of dementia. Yes, I know, 10 months isn’t much time. Changing the story of dementia could take the rest of my life, and then some. And...See Me in Dementia
What happens when you don’t see the “me” in dementia? If you don’t see the “me,” you see the dementia instead, and when you see the dementia, the “me” or the “I” becomes an “it.” You’re...In My World
In My World: Short Stories About Familiar People and Places is an activity for a person in the middle-to-late stages of dementia to enjoy with a reading partner or on their own.
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