How and Why I Got Involved in Changing the Story of Dementia
I often get asked why I am so involved with the world of dementia, with advocates with dementia, with changing the story of dementia. The reason is because we lived that story with my mother. Eight years ago, my mother, Betty, passed away, we think from vascular...Old Story, New Story: Choose the Right Story
Well, 10 months into “Changing the Story of Dementia,” and I admit I was wrong. I can’t change the story of dementia. Yes, I know, 10 months isn’t much time. Changing the story of dementia could take the rest of my life, and then some. And...See Me in Dementia
What happens when you don’t see the “me” in dementia? If you don’t see the “me,” you see the dementia instead, and when you see the dementia, the “me” or the “I” becomes an “it.” You’re...What Does It Mean to Live “Well” with Dementia?
Lately the terminology around dementia has been a hot topic, for example, whether or not someone can be called a dementia “sufferer” or can be said to be “suffering from dementia.” At first I was happy that the Alzheimer Society in the UK...Why “Change the Story?”
“…each of us essentially lives inside our minds, gaining access to the outside world only through the lens of our own interpretation.” J.E. Chamberlain, “Boasting, Toasting, and Truthtelling,” Orality & Literacy: Reflections Across...In My World
In My World: Short Stories About Familiar People and Places is an activity for a person in the middle-to-late stages of dementia to enjoy with a reading partner or on their own.
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