Ideas for Changing the Story of Dementia!

Share Your StoryChanging the story of dementia starts with sharing the stories of people with dementia.

Sharing your dementia story can be a personal or group project–support groups, memory cafes, families, friends –anyone can get involved as long as the resulting story reflects the person or people with dementia.

We encourage personal photos and videos, but your photos can be of anything that is meaningful to you and reflect who you are. Photos can be of hobbies, pets, travel, art. Videos can be of songs, a performance–just keep it clean. We also accept audio files. And, while our focus is on posting stories on the My Dementia Story Facebook page, contact us to discuss other possibilities.

Ideas for sharing your story of dementia

  • If you are a photographer or a painter (or do silk screening, woodcarving, needlepoint, etc.) or you have a hobby or play sports… take a photo or find a photo that represents what you do and write a paragraph or two about why your art, hobby, sport, etc. are important to you. If you don’t type, make an audio recording on your smartphone. Do this project with your care partner(s)–spouse, children, grandchildren, siblings, friends. In fact, get your grandchildren to do a drawing of you and talk about why they love you. Get creative!
  • Make a video of yourself–with a care partner’s assistance if you want–using the LeftStuff.com landing page for this project. LeftStuff.com has prompts built in, and you can decide which prompts you will use for your story and add your own. Basically, you can design your own script. And the video could be of you, or your support group, or your family…as long as it reflects your story of your lived experience with dementia. Learn more about creating video stories here.
  • Make a book with everyone in the group contributing a photograph or drawing or painting. On the left page, mount your artwork or photo, and on the facing right page, write your story. Then contact us. We will figure out how to display your story.
  • Group members can each do a drawing, or painting, or take a photo, or do a sculpture, or whatever you like to do. Designate one person to take photos. Then, each group member stands next to their drawing, painting, etc., and the designated photographer takes a photo. Designate a scribe to write down the story of your artwork or photo.
  • Take a group photo and write a story about your photo. Or do a group video. Perhaps you all sing? Sing a song and record it.
  • If you meet with other people with dementia over video conferencing, take turns saying a few words about yourselves. Record the meeting and send us the video. We’ll take it from there.
  • Contact us about doing a To Whom I May Concern® performance. Video record your performance. (Click here to learn about To Whom I May Concern)
  • Or email in your photo and text. Click here for more information.

As you can see, the sky is the limit. If you have an idea for sharing your story, contact us by clicking here.

 

 

 

 

How to do a photo and text story

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How to do a video story

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Story Topics

Here are some ideas for what to talk about in your story:

  1. I’d like my family to know that…
  2. I’d like my friends to know that…
  3. I’d like my doctor to know that…
  4. I’d like my neighbours and my community to know that…
  5. The biggest worry I have for my family is…
  6. My favourite thing to do is….
  7. My biggest concern for my future is…
  8. My greatest hope for the future is…
  9. The worst thing about having dementia is…
  10. The best thing about having dementia is…
  11. My dream is to…
  12. Dementia matters to me because…
  13. A highlight of my life is…
  14. I like to volunteer my time by…
  15. Something that I’d like you to know about me is…
  16. Someone who has really had an impact on me is…
  17. The thing I like to talk about most is…